Robinson Bradshaw

Month: October 2009

Weekly Twitter Roundup

Each week there are a number of stories and developments that, for one reason or another, don’t find their way into a full-length posting on the Genomics Law Report. Here’s a recap of what I was Tweeting this week @genomicslawyer: RT @dgmacarthur: Cell tweeting article mentions @girlscientist, @phylogenomics, @sciencebase, and my cautionary tale: http://bit.ly/2HQjj6 “Privacy […]

Privacy & Ownership of an Individual’s Personal Genetic Information

This commentary in the Genomics Law Report’s ongoing series What ELSI is New? is contributed by Jennifer Sweeney, Knome, Inc. As personal genetic information becomes increasingly accessible and affordable, the ownership and privacy of such data will emerge as a central issue in genomics. Is personal genetic information, stored within a centralized database where a […]

What Happens When Professors Have Valuable Inventions?

You are a faculty member at a research university and you have made a significant breakthrough. More specifically, you are on the verge of what might be loosely called an “invention.” It could be anything—a chemical formula, a gene, a medical test or therapy, an engineering advance, or even a method of financial analysis. But […]

Finding The Proper Place for Genetics in Insurance

This commentary in the Genomics Law Report’s ongoing series What ELSI is New? is contributed by Mark Henderson, Science Editor for The Times and author of 50 Genetics Ideas You Really Need to Know. It is a mark of the quality of the science fiction movie Gattaca that, 12 years after its release, so many […]

Back to the Future: NIH to Revisit Genomic Data-Sharing Policy

As first reported by GenomeWeb, last week the NIH issued a “Notice on Development of Data Sharing Policy for Sequence and Related Genomic Data.” Although the title doesn’t exactly trip off of the tongue, the NIH’s announcement provides an opportunity to review where we are and where we have already been when it comes to […]

Personalized Genomic Medicine and Health Care Justice

This commentary in the Genomics Law Report’s ongoing series What ELSI is New? is contributed by Michelle L. McGowan Ph.D.,  Case Western Reserve University Department of Bioethics. The most significant challenge to the promise of personalized genomic medicine hinges on the realization of health care justice. From a social justice perspective, meeting the basic health […]

Federal Privacy Regulation and the Financially Troubled DTC Genomics Company

Last month, the Genomics Law Report prepared a three-part series entitled What Happens if a DTC Genomics Company Goes Belly Up?  The series, which was originally published on Genetic Future (see Parts 1, 2 and 3), reviewed the privacy policies of several genomics companies to determine whether they prohibit the transfer of private data to third parties. […]

Education, Not Regulation, Will Benefit Consumers of Recreational Genetics

This commentary in the Genomics Law Report’s ongoing series What ELSI is New? is contributed by Blaine Bettinger, Bond, Schoeneck & King and publisher of  The Genetic Genealogist. Genetic ancestry testing, the use of DNA to explore an individual’s recent or ancient genetic contributors, has been available to customers for almost a decade but has recently been […]

The Direct to Consumer Disconnect: Why the genomics community is going to have trouble talking to patients and doctors alike

This commentary in the Genomics Law Report’s ongoing series What ELSI is New? is contributed by Matthew Herper, Forbes. We can sequence DNA cheaper and faster, and even deal with all the data. But if genomics is really going to impact medicine, we’re going to have to start bridging the gap between the companies and […]

Medical vs. “Recreational” Genomics: Drawing a Line in the Sand

This commentary in the Genomics Law Report’s ongoing series What ELSI is New? is contributed by Allie Janson, University Health Network/Mount Sinai Hospital’s Fred A. Litwin Family Centre in Genetic Medicine and DNA Exchange. To me, one of the most interesting aspects of genomics is the potential for it to be both medical and recreational in […]