Weekly Twitter Roundup

Each week there are a number of stories and developments that, for one reason or another, don’t find their way into a full-length posting on the Genomics Law Report. Here’s a recap of what I was Tweeting this week @genomicslawyer:

  • Op-ed from Jim Watson on what he’s learned (how to stay awake) & avoided (his APOE status) since publishing his genome: http://bit.ly/1zggeh
  • New tool for exploring genetic testing landscape: @dnatestindex Has atypically complete list of genetic test providers: http://bit.ly/2f8FLW
  • Gaps in GINA: CA prohibition on genetic long-term care discrim (not covered by GINA) may have expired http://bit.ly/2OSieW HT @thegenomebook
  • Ars Technica has a very helpful tutorial on the sequencing process used by @CompleteGenomic http://bit.ly/4dY7Rz
  • Completing the Personal #Genomics Toolkit: http://bit.ly/EjWnq What to take away from the @CompleteGenomic announcement
  • More on @CompleteGenomic $5K whole-genome seq: Science: http://bit.ly/yv7GD Bloomberg: http://bit.ly/2weefd CGI PR: http://bit.ly/3C4Jkm
  • A whole-genome sequence for < $5,000? @CompleteGenomic delivers. Sort of. http://bit.ly/3wjW5P (paper in Science, summary from @NatureNews)
  • Personalized Medicine this month is a special issue on Personal #Genomics: http://www.futuremedicine.com/toc/pme/6/6 Great reading, including op-ed from J Watson
  • Good q from @lindaavey – if now is not the time to make genetic data available to ppl, when WILL it be time? http://bit.ly/3fa8Ky
  • The Life & Times of Lilly Mendel: http://bit.ly/1hjjEw New blog from @23andMe co-founder and Brainstorm Research Foundation pres @lindaavey
  • Reminder to scientist-entrepreneurs to check out the ongoing Bench to Market series on the Genomics Law Report: http://bit.ly/4xvnf8
  • What ELSI is New? Self Explorimentation, from Mike Cariaso of SNPedia: http://bit.ly/4aZNIn
  • Great posts from @wilbanks on need to focus on distributed science, not open source science: http://bit.ly/2zJyiF & http://bit.ly/3GZ6Th
  • RT @GenCounsNews: RT @DNAnetwork The Genome Book http://bit.ly/1gbFwd by genetic counselors
  • Analogous to Personalized Medicine Coalition in US RT @PHGFoundation: New European personalised medicine initiative http://bit.ly/3ONz1u
  • RT @NatureNews: Gene-makers put forward security standards http://ff.im/-aZjaB
  • Genomics Law Report: @23andMe Co-Founder Anne Wojcicki Elaborates on Kaiser Criticism: http://bit.ly/3On2vO
  • RT @neandrothal: Anne Wojcicki responds to comments on her TEDMED talk: http://bit.ly/RHIrX
  • From Bench to Market: Don’t Overlook Agreements with the Inventors: http://bit.ly/2NozUd
  • The Participatory turn in medicine – which letter in the alphabet? http://bit.ly/30peRW Barbara Prainsack on the challenges of P4 medicine
  • An Open Letter to the Medical Community (or Should MDs Continue to Serve as Gatekeepers for Genetic Info) http://bit.ly/3IO94O
  • Finally catching up on #GELS09 highlights (Day 1 http://bit.ly/1eOqcZ / Day 2 9:18 PM Delete DTC genomics layoffs not unique to @23andMe. In ’08 it was deCODE: http://bit.ly/195QTa (from @dgmacarthur archives, HT @helixhealth)
  • The Times on the David Nutt firing, and the difficult relations between gov’t and its scientific advisors:http://bit.ly/r1UmJ
  • Murderer with ‘aggression genes’ gets sentence cut http://bit.ly/2wCjK1 (via NewScientist) Not 1st time “my genes made me…” defense tried
  • RT @AccessDNA How to find a genetic counselor on Facebook: http://bit.ly/2TpFeS
  • Misrepresentation of Genetics on TV: Harmless or Harmful? http://ff.im/aWr0t (from DNA Exchange via @sciphu, @dgmacarthur, @nparmalee)
  • Is There an Obligation to Return Genetic Data to Research Participants? Kaiser Responds to @23andMe’s #TEDMED Criticism http://bit.ly/2SNGT3
  • Israel extends law prohibiting genetic intervention (Human Cloning and Genetic Change in Multiplying Cells) until 2016: http://bit.ly/2USwkp
  • Do Gene Patents Hurt Research (The Data Say They Don’t): http://bit.ly/2oCqhQ (from Science Progress, HT @gw_dailyscan)
  • BioNanomatrix, promiser of next-next-gen sequencing, rec’d add’l SBIR funding: http://bit.ly/jxGRf (from @gw_dailyscan 10/23)
  • NIH plans $27M Facebook for researchers http://bit.ly/3hpoup Vastly-lower cost alternative @sciencebase & scientwists http://bit.ly/3YzSh7
  • Newest edition of Scientia Pro Publica at http://bit.ly/2CBPqx Vampires to vegetarians, dawn of the universe to current affairs, & more
  • GLR Post: A Court Ruling in the ACLU v. Myriad Litigation, But We’re Still A Long Way From A Gene Patent Resolution: http://bit.ly/1B0LLh
  • Gene patent lawsuit to continue as court denies motions to dismiss from Myriad, Utah and USPTO: http://bit.ly/4s1i7C (via @PatentDocs)
  • RT @PHGFoundation New publication to help the public understand screening http://bit.ly/4htEss
  • More on the @CompleteGenomic / ISB WGS partnership for HD from @dgmacarthur: http://bit.ly/32Jrmj
  • It’s my genome: should researchers be obliged to return genetic data to research participants? http://bit.ly/ruKx7 (from @dgmacarthur)
  • Why Are We Missing What Is Important In Personalized Medicine? http://bit.ly/JcgI5 (part of What ELSI is New, from @helixhealth)
  • RT @CompleteGenomic ISB and Complete Genomics to Conduct 100-Genome Study of Huntington’s: http://bit.ly/4CwPCw
  • Enabling Responsible Public #Genomics: http://bit.ly/1dLUVZ
  • RT @dgmacarthur Layoffs confirmed at @23andMe: http://bit.ly/1l7w3T

One final note: this is the GLR’s 100th post since our launch this past summer. A big thank you to all of our readers and contributors along the way. If there’s something that you’d like to see us cover in the next 100 posts please drop us a line.