Robinson Bradshaw

Topic: GWAS

Welcome to Scientia Pro Publica #26

In honor of DNA Day, the Genomics Law Report is completing its transformation into a one stop shop for the best in blog wrangling by hosting Scientia Pro Publica #26 and Blawg Review #260 in the same week. We think it fitting that these two august reviews should appear side-by-side at the GLR, which itself sits […]

Genomic Privacy and Re-Identification Redux

New research published this week in the Proceedings of the National Academy of Sciences from Loukides et al. offers up a new method for preserving individual privacy while linking genomic and healthcare data. (“Anonymization of electronic medical records for validating genome-wide association studies.”) Daniel Cressey of Nature News and Katharine Gammon of Technology Review have […]

Is There an Obligation to Return Genetic Data to Research Participants? Kaiser Responds to 23andMe’s TEDMED Criticism

Earlier today, in the latest installment of the What ELSI is New? series, Daniel MacArthur asked a question that has cropped up repeatedly in recent weeks and months as part of the broader discourse surrounding genetic research and commerce: what rights should individuals have to gain access to their personal genetic or genomic data? MacArthur’s […]

Back to the Future: NIH to Revisit Genomic Data-Sharing Policy

As first reported by GenomeWeb, last week the NIH issued a “Notice on Development of Data Sharing Policy for Sequence and Related Genomic Data.” Although the title doesn’t exactly trip off of the tongue, the NIH’s announcement provides an opportunity to review where we are and where we have already been when it comes to […]